The tip of my head to the bottom of my toenails hurt and every part in between. Last Wednesday, January 18th, on what would have been my son’s 30th birthday, I needed a lot of love. More than usual. The stillness of the day exemplified how the world has moved on, and I’m still stuck in the quicksand of November 2019.
The people I thought would at very least “check in” must have “checked out,” because I did not hear a word from any of them, and I found myself focusing on the disappointment rather than on the joy I felt from those who DID show up with kind-hearted words, text messages and emails.
My dear friend, Camille, in fact, surprised me with a lovely sunflower bouquet and beautiful greeting card.
In addition, during the last year, I’ve been honored to assist in writing a widow’s grief memoir. The relatively young widow, Michelle, happens to be a dear friend of mine. The book is partly composed of letters she writes to her deceased husband who passed away tragically three months prior to our family’s tragic loss. Last Wednesday, feeling weighed down with grief, I happened to reread one of her letters in which she elaborates on her mother-in-law’s grief of losing a son.
“I know she is as grief-stricken, but she is stronger than I am and loves more because she doesn’t want any of us to be sad for her. She knows we all have our own grief, and she doesn’t want to add to it.”
Miraculously, through the day I channeled this incredible woman, Rita, whom I know only through writing about her, and found myself feeding on her reservoir of love.
“I don’t want anyone to be sad for me.” I repeated, breaking the pronounced silence of the day.
A repeated lesson that I seem to have to relearn constantly is that love is the most powerful emotion in this world. It can change everything ALWAYS. It’s like a ray of sun beaming through the grayest of days. It is a life force; an energy; a mega dose of Vitamin C.
The day ended on a bittersweet note. I hadn’t heard from my 28-year-old daughter all day on Wednesday. I thought she needed the space and privacy, and the solitude to put one foot in front of the other and inch forward.
At around six p.m. that evening, she called, out of breath. I could barely understand her words. “The cemetery is so dark.”
“What?” You got in your car directly after work, jumped into the height of traffic, and you sat on the highway for an hour, just so you could visit your brother in the dark cemetery, even though I do believe it’s supposed to close at sunset? That all sounds kind of risky to me.
I refrained from saying how crazy I felt her actions were, especially since her character is usually driven by pure logic. Though I will say that they were incredibly similar to what I would have done at her age in her situation, working purely from an emotional realm.
Our conversation was filled with love and honesty, and it reaffirmed my faith in the power of love. This is what love looks like when it’s real — when there are tears and laughter and sadness all mixed together in one moment in time. In the end, all that matters is not a perfect public facade that masks our private despair, but the intimate moments of our imperfect hearts.
I’m learning that grief is my price to pay for love. Paradoxically, living through grief has helped me to push, stretch until it feels unbearable, love in an insurmountable way.
After hearing the news about Lisa Marie, my sadness seemed unrelenting, because I had followed every segment of her grief story. Each time she shared a bloody slice of her grief to the world, I grew short of breath. All that came to my mind was the figure of Atlas in Greek mythology. He was a Titan condemned to hold up the world for eternity.
Man, when I visualize Atlas, I can’t stand his back-breaking pose; and, alas, I imagined Lisa Marie’s face instead of his. It was like looking into a metaphorical mirror and seeing my own reflection.
Five months prior to her death, in honor of National Grief Awareness Day, “Lisa Marie Presley penned an emotional essay” about her journey and the lessons she learned after her son died.
In the essay, she writes: “Death is part of life whether we like it or not — and so is grieving. There is so much to learn and understand on the subject, but here’s what I know so far: One is that grief does not stop or go away in any sense, a year, or years after the loss. Grief is something you will have to carry with you for the rest of your life, in spite of what certain people or our culture wants us to believe. You do not “get over it,” you do not “move on,” period.”
Coincidentally, my niece sent my daughter and me a text, “This made me think of you both…” and a copy of the same essay that appeared in People magazine with the headline, “Lisa Marie Presley Said She Was ‘Destroyed’ by Son Benjamin’s Death.”
At the time my niece sent it to me, I couldn’t bear to look at it until days later.
In the same essay she wrote the excerpt below:
” … grief is incredibly lonely. Despite people coming in the heat of the moment to be there for you right after the loss takes place, they soon disappear and go on with their own lives and they kind of expect for you to do the same, especially after some time has passed. This includes “family” as well. If you’re incredibly lucky, less than a handful will remain in contact with you after the first month or so. Unfortunately, that is a cold hard truth for most. So, if you know someone who lost a loved one, regardless of how long it’s been, please call them to see how they are doing. Go visit them. They will really really appreciate it, more than you know ….”
Lisa Marie was on point. Loss can feel like a whirlwind, leaving nothing behind but destruction. It can be difficult to pick up the pieces and start rebuilding, especially when you are doing it alone, ditched by the rest of the world.
Her final, personal lesson is below.
” … particularly if the loss was premature, unnatural, or tragic, you will become a pariah in a sense. You can feel stigmatized and perhaps judged in some way as to why the tragic loss took place. This becomes magnetized by a million if you are the parent of a child who passed. No matter how old they were. No matter the circumstances.”
Again, everything she concludes is absolutely true and not an understatement. Frankly, while processing the news of her demise from a “broken heart,” I also felt relief for Lisa Marie. Atlas’ weight was, at last, removed. I shared with my niece how completely saddened I was by her loss.
In response, she wrote,”Nothing wrong with finding a kindred spirit, no matter how it manifests.”
Today, I regret not contacting Lisa Marie back in 2020 after she had lost her son by suicide. I simply did not make the time. (Saying, “I didn’t have the time,” is incorrect since I am one hundred percent responsible for ME and MY actions.)
During last week, I spent a good deal of time reflecting on her death, pacing around my office where I have two calendars, one on the wall and one on the desk. Both of them have stick-it notes on them, smack center, covering up the January 17th block, the day I was so freaking sure my son would be born and covering up the 18th block, his actual birthday. Sometimes, with the world on your back, doing everything you possibly can to press forward, “blackouts” are the best weapon to tackle the challenge.
For this week’s blog post, every single piece of me is on fire with guilt, regret, pain and remorse, and my son’s voice from long-ago, stating, “I won’t make it to 30.” I really didn’t want to sit my inflamed body down to hurt it more and think of the unthinkable, but I was so moved by what Lisa Maria and her family endured.
Now, my heart goes out to the survivors of Lisa Marie, and I honor and acknowledge the grief of her family. In return, I am afforded the strength to honor and acknowledge my own grief.
The way I look at it is if we take a leap of faith and open ourselves up to love, we open ourselves up to the risk of experiencing grief. It begins with love and ends with love. If life surpasses death, then love is what will guide us through the infinite journey.
For Lisa Marie, Benjamin, and Marshall, I hope they are now liberated from their back-breaking duties on Earth. Whether it involves physical burdens or mental obstacles, I also hope they are no longer crushed by the weight of life and, instead, free to catapult and soar to new heights.
Some experts say that occasionally it’s necessary to “take a break” from grief. I learned this firsthand during a frigid December 2020 Christmas day, 36 days after I lost my beloved 26-year-old son who died by suicide. My then 24-year-old daughter, Alexandra, returned home during this time, and we mourned together. Lounging in the living room in shabby sweatpants and tops, noshing on a conveyor-belt assortment of Trader Joe’s chips and other salty and sweet snacks that my dear childhood friend Anna supplied, we insulated ourselves, cranked up the heat indoors as the temperatures dipped to below freezing outdoors. Alexandra’s soft, furry slippers with funny smiling sloth faces, the ones that arrived a month prior in a condolence gift box from her former college roommate, Suzanna, felt like they were out of sync with the preceding extreme 36 days, oozing with despair, agony, regret, remorse and anger. We symbolized the walking wounded. Drained and hollow as if we were toilet plungers.
Who would believe that only a year prior, we were in New York City’s West Side in a beautiful church singing Christmas carols as if we were Carnegie Hall performers? Three hundred and sixty-five days later, half eaten tubs of white paper take-out food containers brimming with Chinese dumplings, noodles, fried rice and legions of lo mein lined the coffee table, our designated sanctuary, the view outside obstructed by the drapes drawn closed.
My daughter and I spent about twenty minutes scanning for TV channels to watch, searching for something to numb the pain. I finally surrendered to Alexandra’s request to watch The Marvelous Mrs. Maisel, especially since she had never seen it before. Before the tragedy, I was The-Marvelous-Mrs.-Maisel loyalistsince its premiere in 2017. If you are unfamiliar with the series, it opens in 1958 and ends in the early 1960s and centers around Miriam “Midge” Maisel. Although her role that begins as a happily married woman with two children changes, chasing her stand-up comedy dreams and adhering to her affluent New York City lifestyle remain constant.
After the tragedy, I was reluctant to watch The Marvelous Mrs. Maisel because I felt it was something that aligned with a “happy-people’s” existence. Not only did we end up watching the episodes of the new third season that Christmas, but we watched the previous two seasons as well!
There are so many things in the show that resonate with me. For starters, a lot of the show is filmed in New York City’s Greenwich Village, a hotbed of stand-up comedy. “The epicenter of the city’s 1960s counterculture movement” is by far my favorite place in the world. Even now, whenever I go there, the young heartbeat I feel in the village lifts my old, worn-out spirits. To me, this is the epitome of America, for the most part, at its best. The village is more than a melting pot. It is a pot of gold, laden with people from all walks of life. The important thing is that the village really is a village because it encourages free expression. If you are bullied anywhere else in the world for any reason, the best therapy is to spend a little time here. Although you may appear outwardly very different from others around you, the sense of belonging is inherent; there tends to be a feeling of recognition in the air. In fact, the village is where I enrolled and participated in stand-up comedy workshops in the 1980s and experienced my own marvelous, albeit short-lived, show biz stint.
Anyway, watching The Marvelous Mrs. Maisel, f-bombs and all, saved our souls that fragile holiday season of 2020 and gave me faith knowing that although my laugh had lost a lot of its carefree boom, its flame had not faded.
So, this brings me to a very important date, February 18, 2022: season four of The Marvelous Mrs. Maisel. From the minute I heard about the new upcoming season,I was eager for its long-awaited arrival, like a kid getting his or her braces removed after walking around for two years with the metal invasion in their mouths.
As is, the new, season four, series rolls out two one-hour long episodes at a time. I planned to watch one hour of the show on Friday and the other hour on Saturday. Initially, I was timid to hit “play” because the minute I saw the old, familiar characters, my heart tumbled as I recalled the unbearable swords of circumstances that transpired in November 2019 and how the show helped me cope. Nonetheless, I hit the forward button, and one hour led to two. I was hooked from the beginning to the end of both episodes.
If you can get past the f-bombs and a few select scenes that some viewers may find inappropriate (nudity, profanity, alcohol, drugs and smoking, adult themes), the first two episodes are one big ode to the meaning of opposites. Free expression and individual voice versus repression and suppression. The importance of a financial framework versus the desire to pursue art as your true calling in life. And so many other things that call to mind the breadth of Greenwich Village, and its ability to tug hard at your heart strings and awaken your soul that was likely lost about the time your identity was wiped out when you understood and accepted the untruth behind the social conditioning of, “Big girls or big boys (especially) don’t cry.”
The first two episodes of season four of The Marvelous Mrs. Maisel touched upon nearly every tenet of existentialism and so much more. Miriam, the main character, is ballsy and brash and bold and is going to be heard, damn it, no matter what, and turn over convention. Subsequently, though, she’s not about to part with her hoity-toity upper west side New York City tastes either. All the while, she’s trying to rise up again from a rubble of failures and secure her share of the American Dream.
What’s happening in the show at its core, synonymous with the Greenwich Village vibe, is that so much that is not talked about and kept taboo unhinges and revolts. It can no longer shut up. It cannot be shutdown. It needs to be spoken, heard, not judged or erased.
It needs the human seal of “I see you” approval that we are all desperate for. My once alive son was a good example of wanting to be seen, heard, appreciated, in spite of how his differences made him feel separate from the rest of the world.
It’s as simple as that.
What fits in with this overall “fitting in” theme is a book that I’ve just finished reading Wintering, the power of rest and retreat in difficult times by Katherine May (2020).
The author writes about her mental breakdown at 17-years-old and, after the experience, she talked about it and talked and talked. She continues the story as she writes:
“I am aware that I fly in the face of polite convention in doing this. The times when we fall out of sync with everyday life remain taboo. We’re not raised to recognize wintering or to acknowledge its inevitability. Instead, we tend to see it as a humiliation, something that should be hidden from view lest we shock the world too greatly. We put on a brave public face and grieve privately; we pretend not to see other people’s pain. We treat each wintering as an embarrassing anomaly that should be hidden or ignored. This means we’ve made a secret of an entirely normal process and have thereby given those who endure a pariah status, forcing them to drop out of ordinary life in order to conceal their failure. Yet we do this at great cost. Wintering brings about some of the most profound and insightful moments of our human experience, and wisdom resides in those who have wintered.“
Okay, so what I’ve realized about myself now is that, as opposed to Miriam, I became a “good girl” and discarded the rebel status that I initially strived toward. This outcome, I found out 35 years later, can be a consequence of living a so-called sober, so-called adult life. It’s not a bad thing that I’m no longer the firecracker Miriam is and, quite simply, the fight in me now is, for the most part, exhausted.
But the thing about grief is that it has forced me to make a place for it. It is locked in me, next to my memories and my hopes and dreams. In the process, grief has peeled me to the core. So now I am left with my core and me. I don’t have the strength nor burning desire to be a rebel anymore, but my inner voice says that I don’t want to keep hiding anymore either. I’m done with listening to all the blood-hungry critics in the world that managed to seize my brain and ferment it. I keep hearing the song, “Kill the voices” on the radio.
My son had lost his ability to “kill” those voices that erased him. So he did it the best way he knew how, impulsively and brutally, leaving us spewed like squashed roaches in the aftermath.
All the more reason that I’m not keen on too many opinions and certainly those that come from pulpits, real and imagined. I’m not keen too much on my own opinions either, because I found out the hard way, how many times I am more wrong than right.
One thing that I am keen on is hearing Midge’s voice, f-bombs and all. At the end of the day, the story really is about an outspoken woman who knows her worth. And it is clear in the show that women have to work twice as hard to succeed. In turn, if others give her a chance to tell her truth, maybe it will spread beyond places like the village where she performs stand-up comedy. Maybe, too, we can all start learning the impossible art of listening for the sake of hearing, not changing, ignoring or stifling; for the sake of an “I see you” universal nod.
So, after watching the first two episodes of season four last Friday night, I laid down in my bed in a flood of tears that was as surprising as a drain that bursts in the bathroom in the middle of the night. I realized how Mrs. Maisel lends her voice to me right now, because I’ve fallen so far inside myself, I don’t know if I can muscle my way out unscathed. I don’t know if I have the courage. I don’t know if I can kill the voices, or if they have killed me, metaphorically instead.
In the interim, I am trudging through this week, waiting for Friday to hear the voices and the antics that not only give me comic relief and, if I am lucky, grief relief, but also a channel where I imagine I am in my twenties again. It was during a time when I orchestrated my world so easily in a leopard top and black rimmed glasses, my voice booming into the microphone loud and clear, laughter rolling through like a seamless tide rolling in to cleanse the sediment on the crusty shoreline.
My mind raced. I accelerated my car, a pair of Suicide Awareness ribbon magnets on the rear. My son bought the car and owned it for only a month before he passed away. I sped like a champion racehorse determined to arrive at the dental surgeon’s office on time. I was scheduled for dental work on one side of my mouth. Now, suddenly, another tooth on the opposite side of my mouth flared up. I reasoned, after the dentist examined it, he would prescribe an antibiotic before any further work could be done. The visit would amount to a thirty-minute span, maybe less.
On my usual route, I whipped past a strip mall, then Armory Road and St. John’s Cemetery, one of the preferred burying grounds of many deceased parishioners at the Ukrainian church where I grew up, and which I still occasionally attend.
From the roster of people who were buried there, without fail since my grief journey, I pictured dear, sweet Anne Marie. About fifteen years younger than I, she died very suddenly about ten years ago from a heart ailment. I saw her over-sized body, weightless and free, float like dandelion fluff carried by the wind as she drifted above St. John’s knoll that shoots to the sky like an ethereal rocket eager to launch.
“You’re free, Ann Marie. Free!” I sang in my mind, at the same time imagined her airy body breaking into somersaults as I zipped past.
Two blocks away from the cemetery is a tidy brick schoolhouse that you’d see pictured in a 1950s children’s book, a good book to curl up with. The first time I encountered it was a year into my grief journey on the way to the same oral surgeon’s office. Tears streamed down my face like dozens of icicles melted in a flash when I recalled how we gathered sometime in 2008 for a high school wrestling tournament there. My then 14-year-old son resembled a mustard-covered pretzel on the mat, competing against his opponent. The sheen of my son’s white teeth still apparent behind his mouth guard in sharp contrast to his moist, crimson, overly ripe tomato-toned face. He vocalized his final groan of defeat, a pulverized pancake pinned to the mat.
Over the last year, when I pass by now, I typically save my tears for other hours in the day but cannot escape hearing his groan that pierces me like one meat hook caught between my two ears. No reprieve in sight, this is my grief journey long after I came upon the stark realization that I had mistaken the elementary school for the high school where I thought the match had once been held.
My arrival at the oral surgeon’s office was marked with my mind’s general grief and trauma-related brouhaha, so much so that this time I nearly fell back when the woman at the receptionist’s desk took my temperature to ensure I did not carry any virus. Fortunately, she was multitasking, and she would not have noticed if I had collapsed, deep in conversation on the phone, apparently reassuring a patient while scheduling his or her wisdom tooth extraction.
Overhearing the conversation, I visualized the buried body of my 26-year-old son, his skeleton, his teeth, wisdom teeth intact. My final trip I made to see him in Bowling Green, Kentucky, when he was alive, was to accompany him to an oral surgeon to extract his wisdom teeth. He bailed out the last minute. It was my last trip with him in that state. We planned to visit some kangaroo sanctuary the next time. Before I left, I had to force him to accept the clothes I purchased for him at Target, because he did not want me to spend my money and also prided himself on his minimalist lifestyle.
At this point, the dentist’s assistant greeted me.
“I am pleased to meet you. My name is Kerwina.”
I tried to shake the dandelion dust out of my head, acting as if it were just a normal day in a normal life. “How’s your day so far?”
“It’s a grateful day,” she exclaimed, her eyes twinkled above her mask.
In my former life, my tone of voice would have spooled noisily, magnified her optimism. Chattered and affirmed life’s joys without restraint, back in the day when I worked a program for a straight 35 years, a program that helped pioneer the topic of gratitude into universal conversation. Now, I mirrored my son and fell silent. I was desperate to obtain my prescription and call it a day.
“Which tooth?” my dentist asked after he was brought up to speed on my latest dental dilemma. “Left or right?”
There was a fat pause. I pointed to the right. I pointed to the left. My mind contorted beyond pretzel proportions.
“I think someone has to go back to second grade,” he rudely blurted out.
Fortunate for him how, unlike my internalized son, he could slap out his feelings at will on non-threatening bystanders, so his insides didn’t boil up inside him, expand in him like a decaying cavity in a tooth. Without rebuttal, I managed to get my left and right sides straight. After he examined my left side, I was nearly shocked to discover I would lose my tooth then and there. After discussing the matter, I knew there was no other way to escape it, and his assistant prepped me for the inevitable.
Kerwina’s compassionate nature reminded me of Ann Marie, who had spent an honorable run working as a registered nurse prior to her death. When the dentist injected me with Novocain, Kerwina held my hand tightly, her face above her mask soft and fluffy like a dandelion. Once the dentist started working on my anesthetized mouth, I felt the pliers around the culprit tooth. This would be the third tooth I would lose in a six-year span. Suddenly when he pulled, I wanted to swipe the instruments out from his powder-blue gloved hands. Stop! My mind shouted in horror. I don’t want to lose my tooth. I have to hold onto what I have. Don’t you understand? So much has been pried from me. I’m barely holding onto faith. I have to keep everything around me. My son needed his wisdom teeth pulled out, but I need the rest of the teeth I have to stay in. Please stop. I closed my eyes tightly until they hurt. I pictured myself wrestling with the dentist, engaging in a tug of war over my tooth, holding back tears in the process.
After it was done, I yearned for Kerwina to hurry and clean me up, so I could request to take my tooth home. Where did they put it? Did it go into a designated disposal along with other fallen teeth? I thought of my son’s umbilical cord, the one I swiped out of the hospital shortly after I delivered him, and how I let it go after 26 years, allowed it to return to its rightful owner in his coffin, along with a collection of other forked-over mementos. Then I visualized the tooth, flushed down an imaginary toilet.
A few minutes later, that gentle-natured dental assistant helped me rise until I achieved my balance. I felt my swollen mouth along with my swollen heart. I could not utter a word. Kerwina hugged me in an uncannily knowing way. Her compassion almost forced the words out of me: “It was a grateful day for me too.”
Instead, I murmured a good-bye, afraid to face the mirror and the vast space in my bloody gum and empty heart and drifted slowly to my car in the parking lot.
Quite coincidentally, that night, reckoning with the powerlessness of lost teeth, as well as a lost grip on life, I read a book review on the NPR Public Radio website written by Kristen Martin about Kathryn Schulz’s recently published memoir “Lost & Found.”
Suddenly, after I finished reading, I understood that I was angry at existence, at her tricky kleptomaniac, sticky fingers. Taking what she felt was rightfully hers, as I bowed down to her, my how-dare-you phrases spitting in retaliation to no avail. I share the gutting loss that Ms. Martin explains in the review:
…. Schulz unravels universal truths about why loss guts us, and how it forces us to grapple with our place in the world and its workings. When we cannot locate what we have lost — whether it be a sweater in a small apartment, Malaysia Airlines Flight 370 in the Indian Ocean, or a dead loved one on this plane of existence — we often react with “a powerful feeling of disbelief” because it seems that “the world is not obeying its customary rules.” Surely it cannot be possible that these losses are irretrievable. In fact, Schulz reminds us, the rules of our world dictate that we will lose our belongings and lose our lives:
“To lose something…forces us to confront the limits of existence: the fact that, sooner or later, it is in the nature of almost everything to vanish or perish. Over and over, loss calls us to reckon with this universal impermanence — with the baffling, maddening, heartbreaking fact that something that was just here can be, all of a sudden, gone.”
In the same manner, too, like my tooth, my grief journey has plunged me into an abysmal burrow. In this place, there is nothing sacred, because I am too afraid to hold onto anything, seeing it for what it is: passing vapor. Ms. Martin writes:
Here, Schulz forces us to sit with that which we ignore in our quotidian lives, so that we may go on living them — the impermanence of everything we love. The death of someone you’ve shared your life with is paralyzing, because it plunges you into stark awareness of that impermanence. And yet if we want to keep living, we must make peace with the knowledge that nothing in this world is forever.
After rereading Ms. Martin’s review, I hankered down under my bedcovers to protect myself from the sudden chill. My gum aching, medicine worn off, pain awakened. For years, I did not relinquish faith and tried to save the tooth that amounted to a failed root canal. Despite all my efforts, it was gone, pulled, discarded, gone.
The wind howled as I pictured all the dead matter, cells, atoms, tooth chips purged out of the earth and landfills of brokenness, making room for the new, whole flower buds in the spring about 90 days away. I could see Ann Marie swaying around, wearing a crown of dandelions, whispering as smoothly as a silky velvet ribbon: “It was a grateful day. Now, a grateful night. There is nothing to cement it with, only stuff it into the cavity of memory, there will you find permanence, a level floor on which to dance peacefully.”
My mother sullenly responded anytime I invited her to join me in a fun activity or special event. As I’ve previously mentioned, she was not only a World War II survivor, but trauma and pain shadowed her for most of her life.
A flat out “No” from her was unnecessary since the sharp tone of refusal was unmistakable. However, I discerned the truth. Her baby-like face, twinkling, daring eyes and partially upturned pink lips forcing down what would be a natural upturned smile, revealed the opposite of her initial response: “Sure, I’d love to go to … “
In fact, until she grew much older and frail, in spite of her protests, she willingly accompanied me on outings, whether they were to the local library, a tag sale, diner lunches or most of the extracurricular activities my kids were involved with when they were young.
After she died in 2015, I missed her company, but forgot about her fussing that preempted our outings. That is, until after our family tragedy and the aftermath of trauma in 2019. Suddenly, whenever I received an invitation or gift of any kind, my mom’s familiar words entered into my mind, “That’s for happy people.”
Survivor’s guilt can do a number on you. To say it feels like you’re “carrying a heavy burden” is pushing it. It feels more like you are stuck in a life that has become a hunk of hardened glue.
This brings me to the generosity of my dear friend Michelle who, at the end of last year, gave me a gift card for a massage. What do you think my response was? Thank you! Thank you! On the other hand, my contradictory mind, though, lamented: “That’s for happy people.”
Sadly, my last massage experience took place about one month before I lost my beloved son. I laid on the table incredibly relaxed and melting to pieces, but my mind battered me. I felt tremendously guilty, pampering myself while my son led a miserable dark, depressed life. Flashbacks of this dreadful time, of course, made me even more reluctant to schedule another massage.
Before Marshall’s birthday rolled around, I knew to “sit around” like a magnet attracting more darkness to the severity of the painful situation would not be wise. I found, however, to sequester and seek solace helps my pain management the most. So why not, I reasoned, take advantage of a massage — in a quiet space under a pair of healing hands?
The day before his birthday, I made an agreement with myself. “If I am able to schedule a last-minute appointment at the place then, so be it. It is meant to be.”
It was meant to be because wouldn’t you know it, there was an opening. The massage therapist’s name was Dawn. I also interpreted the double meaning in her name, the first appearance of light in the sky before sunrise, as a sign.
I put my full faith into Dawn, a random woman I never set my eyes on, but who could either break the rest of my broken pieces or help me try and not shatter any more of the messy debris.
Needless to say, I was a wreck when I arrived on a brisk early afternoon, January 18, 2022. It boiled down to, I really, really needed a good massage.
When the woman who greeted me asked, “So, what brings you in?”
I swear I was so close to replying, “My dead son.”
Instead, I said, “A gift card.”
Ironically, Dawn turned out to be a nondescript woman who wore a mask that covered more of her face than necessary in a facility that requires everyone to wear face protection during these pandemic times.
Later, undressed and comfortable on the massage table, every time my mind started to scatter and squirm like an army of ants without my consent, I did my darnest to focus on what was. Be in the now. Humorously, her freezing cold hands won most of my focus. Then suddenly out of the blue, I recognized: “This is my life now.”
I was inspired from the publisher’s description of Joyce Carol Oates’ A Widow’s Story: A Memoir; a quote I could easily apply to myself now. “There is a frank acknowledgment of the widow’s desperation—only gradually yielding to the recognition that ‘this is my life now. ‘”
A few moments later, I heard my son’s voice in my mind shout, “Don’t touch me!”
Perhaps because of his shaky early years in the hospital, but my son, in the way some people don’t like to be around cats or dogs, was uncomfortable with physical touch and didn’t like a lot of human interaction.
The realization flew at me like a boat’s paddle: That was his life then and this is my life now.
My faith in Dawn paid off. At the end, I felt fluid. And it felt good physically. Mentally, my gift of peace was still intact.
On what would have been my son’s 29th birthday, after allowing Dawn’s icy hands to kneed and stroke me, I signed up for a year’s worth of massages.
This is my life now — if all goes per plan, I am now booked for a year of massages to take me through to his thirtieth in 2023.
This is my life now. Some, like Michelle and Camille, have stayed with me. Others have disappeared — to many of them I represent the fragility of our existence. In contrast, I honor my grief and the voices, oh, the unmistakable, unbelievable magnitude of voices that spin inside me and are part of all that I am and all that I will ever be, planted forever in the soul of now and every tomorrow, rising above the physical plane of temporary to the dawn of permanence and eternity.
Coincidentally, this month I discovered a concept known as Blue Monday. It gained popularity in 2005, after a British travel company played up psychologist Dr. Cliff Arnall’s theory that the third Monday is the most depressing day of the year. He backed his findings with such measurements as weather factors.
Other companies followed suit and used the day to sell products to help elevate the Blue Monday mood. Naturally, there was a lot of backlashes in this approach since it minimized the enormity of what it meant to live daily with depression, as well as Seasonal Affective Disorder (SAD), which, you knew all too well, is a form of depression that may manifest in certain seasons.
Anyway, Blue Monday is the kind of interesting concept you would have uncovered and brought to my attention. I can only imagine how we might have dove into an esoterically free exchange of ideas about it. I’m not writing to debate Blue Monday. I wanted you to know I took the research one step further in the same manner you would have done. Turns out, on January 18, 1993, you were born on, yes, the third Monday of the month, Blue Monday. Before I conducted the extra search, I already knew the results.
After informing you of this discovery, I pictured your perfect head tilting right and then left, your over-sized eyelashes cast over your eyes as you whispered in defeat, “Figures.”
Anyway, I also wanted to tell you that fresh on the heels of your birthday, one of my dreams of you was that you were a young boy, maybe six. You kept jiggling two of your loose bottom teeth, and with every movement, I felt pins and needles jabbing my body as if I were enduring a full-body tattoo all at once.
I kept pleading, “Marshall, stop doing that. Stop!”
You listened to teachers, friends and the bullies that led you to the grave, but from the moment you were a toddler, I don’t ever remember when you listened to my directives. How I argued with you to come inside for dinner. Leave the house for school or anywhere else. Put on your shoes. Take off your shoes. You name it, whatever my request, you didn’t oblige. As you grew older, it got to a comical point.
On the other hand, you listened for hours when we dove into the most random topics of discussions over the years. In fact, your sister, who happened to be eavesdropping, wrote a note about one such discussion. You were probably around seven, and, ironically, we discussed the “grim reaper.” At the end, Alexandra wrote, “Mom talks him straight.”
The note mysteriously turned up shortly after the tragedy. I preserved it in plastic under plexiglass on the nightstand in my bedroom. You wouldn’t think the topic of the grim reaper could warm my soul and help my faith walk, but it does because it gives me a sense of peace: I talked you straight. Do you know how relieved I am to think I managed to do that although it only amounted to a one-time deal?
Looking back, my purpose in life was to be the best mother I could be to you and your sister. I failed forward many times. I’d say I succeeded many times too. It warmed my heart the many times you told me you had “a wonderful childhood.” I hope you knew that I loved parenting both of you. Your sister, for the most part, stayed on the beam. I did keep a close eye on her though, because some of her falls were pretty rough. You, on the other hand, well, it was more like “Where IS the beam?” Man, I felt like I was chasing after a flyaway balloon sometimes. Hell or high water, I resolved to set that balloon “straight” in my hand and never let it go. Thinking about it still energizes me.
Of course, no matter how it seemed that I “talked you straight,” I was never in control of your destiny. In fact, even those big brains at Yale couldn’t get your birthday “straight.” I wonder if you weren’t born on Blue Monday and, instead, in mid-April, maybe then you wouldn’t have been so down.
Anyway, I never told you about the details of the day you were scheduled for open heart surgery at ten months old. Frankly, I didn’t give it one thought before the tragedy. I will tell you now about that day and how your father and I paced slowly down a Yale New Haven Hospital hallway that was marked by a sudden dip in temperature. You felt like fresh-turned butter waddled in the hospital’s plaid checkered blanket in my arms. On route to the operating room, I noticed a heavy-gauge stainless steel gurney. I developed a wild, sudden inclination to secure you on it and wheel you in the opposite direction.
Without incident, we reached our final destination, a large area that reminded me of a hangar for planes. Instead of a turbojet, a nurse, dressed in scrubs with cartoon characters that seemed sickeningly overdone with smiles, appeared. I cannot remember her words, but I remember her reaching out for you to take you into the OR. Instead of handing you to her, my hands became tighter. I froze, resembling the twin sister to the heavy-gauge stainless steel gurney.
“Give her the baby,” your dad said, an unmistakable irritability in his tone. “Give her the baby.”
Instead of complying, I stepped back. The nurse, like a purse snatcher, moved in closer and attempted to pull your angel-like body out of my grasp.
“Give her the baby.”
My stainless-steel hands melted as the authoritative nurse retrieved your sweet, quiet body and disappeared in a huff. I was left behind, feeling as if she had amputated my arms.
Since last week, I’ve been replaying that moment over and over. Letting you go, over and over.
So, as it turns out, yesterday was the third Monday of January, Blue Monday and Martin Luther King’s birthday too. Today, you, our “miracle baby,” would have turned 29. If someone gave me a choice between being a famous billionaire or watching you grow into the incredible man you had become, the choice would be a no-brainer.
What I don’t think you also never knew was that after they successfully repaired your heart, I felt as if I had won the biggest lotto sweepstakes of all time. Actually, thinking back, I did. There was no room for Blue Mondays back then, the odds were in our favor — until they weren’t.
Now, the remembrance of our winner’s circle is in full view in a little note of faith waddled in plastic under plexiglass.
Blow out the candles, sweet, quiet son …. I love you with every bit of my broken heart and grief-scarred soul.
Through the media, I have witnessed community resilience, response and recovery efforts during the dire situation this past weekend. For instance, one of the tornados ripped through and destroyed the Mayfield (KY) First United Methodist Church property. The pastor, Reverend Joey Reed and his wife, took shelter in the church basement and survived the catastrophic event.
During a TV broadcast interview, his gratitude for the safety of his wife and children prevailed. He said that things are replaceable; people are not.
In fact, the reverend further explained that the topic of “joy” was the theme he had planned for last Sunday’s sermon. Fortunately, he was still able to present the sermon during a service at another local church that the tornado bypassed. Interestingly, the only bulletin from Reverend Reed’s church that survived the calamity includes a synopsis of his sermon.
The sermon defines joy as something that is internal and thereby it is a permanent fixture for as long as we live. Happiness, on the other hand, is external and is fleeting.
“Joy is often mistaken for happiness, but happiness can change by a turn of events. Joy is something that abides. That’s what we’re holding onto,” Reverend Reed said.
In the same spirit of joy, although the parish has lost the sanctuary, he also stated, “That building was the repository of our memories. We have to remember that those memories still belong to us. They cannot be taken from us even by something as devastating as this tornado.”
I only hope that Clayton Cope’s parents, whose son would have turned 30 at the end of December, and all the other parents who lost young adult children at the Amazon warehouse in Edwardsville, Illinois, and children of all ages throughout the six effected states will manage to cherish their “repository of memories” as they now undertake the most unbearable journeys imaginable.
To these bereaved parents and to all the other survivors who are swallowed by grief in so many forms from this tragedy, I stand with you. I salute your bravery as you endure your faith walk. Always remember, the power of faith lies in the acceptance of our powerlessness.
This past Friday, my partner’s eldest daughter called to extend her condolences to me and my daughter for Marshall’s death. Of course, she previously had offered her condolences to us over two years ago when our family tragedy occurred. In fact, she was here every step of the way. When I mean “here,” Laura and her husband were “here” in our kitchen. They cooked, cleaned, enabling me to tend to other matters. I will be indebted to them forever.
Anyway, it took another tragedy for her to obtain a closer, bird’s eye perspective of our painful journey and the extent of what it means to be powerless.
During the telephone call, Laura explained that her dearest friend’s 14-year-old son died by suicide on December 1st. He was star athlete, well-liked at his high school and did not have any substance abuse issues or outward signs of mental health challenges or depression.
“One day you see them and then you don’t.”
I remember these words uttered by a young man and how he elucidated in a somber manner the death of his high school football teammate who had died by suicide. I met him in Norwalk, Connecticut in March 2020 while participating in one of the Out of the Darkness Campus Walks for Suicide Awareness, sponsored by the University of Southern Mississippi.
The man I met at the walk explained that he last saw his teammate cheerfully perched on the high school’s bleachers.
“One day you see them and then you don’t.”
As I spoke to Laura over the phone, I steered clear of the background details. Right now, though, as I write this blog post, the young man is brain-dead and his mom has spent every waking hour by his side at the hospital, squeezing the time-limited moments like membranes of an orange in a drought-riddled, barren land. Although I’ve never met them, mom and son have been ironed into my thoughts like starch since I heard the news.
For over 37 years, I have followed a program that teaches me that I am powerless over people, places, things and most situations. This means, although I was able to help many people, I could not help my own son at the end. (I was powerless over the situation — despite my ego reprimanding me repeatedly, shouting, “You could have saved him.”)
So, distraught after hearing Laura’s news, I revealed the situation to a close friend without breaking the 14-year-old’s anonymity. She said, “Well, you have walked in his mom’s shoes. You know how it feels.”
Right then and there, I responded, “No!” (Please note the exclamation point!)
I walk only in my shoes. I can’t fit my big clunkers and a partial bunion into anyone’s shoes no matter how I try. I might fall into the International Shoe Size Chart, but the whorls and ridges are unique in toe prints. Like hand prints, no two footprints are identical and neither are heartbreak, grief and pain. Everyone processes human emotions and feelings differently.
Mattie Jackson Selecman is point on in her new book, Lemons on Friday: Trusting God Through My Greatest Heartbreak, “Everyone’s grief is different. What is true for most grievers: the illusion of control over our lives — the tight, self-preserving grip we thought we held on our person and our plans — is now gone. What we thought was secure has been snatched away.”
The quote helps to elucidate what I believe I have in common with the grieving mom in the ICU. We realize what it means to be powerless — really, badass, fall-down-on-the-ground, kicking and screaming, dust-particles-flying everywhere powerless. In other words, I have no control over people, places, things and most situations. (I only have power over my own behavior.) Dictionary.com defines powerlessness as without ability, influence, or power.
The mom grieving over her brain-dead son and I undeniably understand what it is to be helpless in the face of a situation that is totally unjust, unfair and worse than cruel. There is nothing we can change about what has been thrust upon us. There are no miracles in our human eyes.
“Surrender to win!”
That is a familiar saying among my peers. When all else fails, life support is removed and there is no hope for recovery, we surrender to what is, not what was or could be.
In 2015, Writer Maria Popova wrote an excellent book review for H is for Hawk by Helen Macdonald. In her review, she poignantly captures the essence of surrender: “And yet somehow, Macdonald unboxes herself as she trains Mabel into control and Mabel trains her into the grace of surrender, of resting into life exactly as it is rather than striving for some continually unsatisfying and anguishing version of how it ought to be. “
My friend Brian A. used to say it best: “Accept everything all the time.”
“It is what it is,” my daughter constantly reminds me.
This also means, we do not seek answers, play the blame game or find cowardly tactics to bolster a lost cause that, in the end, causes us to seep further into despair, anguish and a meritless rabbit hole of a self-made hell. Instead, we stare at the raw reality in terror and plunge deeper into our souls and pan desperately for the gold that is our inner strength.
Yes, it is what it is and so it is.
“One day you see them and then you don’t.”
My own personal tragedy aside, I know almost everyone has experienced some sort of loss and pain. Regardless of the circumstances, I am one of the fortunate ones. I was able to uncover a priceless reserve of peace that I first started panning for — about the same time I began to comprehend the word powerless — over 37 years ago. What this essentially means is that I can extend a listening ear and a safe place of my heart to a fellow sufferer, an empowering space amid the turmoil of the world to which we retreat, surrender our egos, rest into life, press through the hard and hold tight to faith, hope and each other.
Every time I see a lawn sign: “Love Lives Here,” I think of Geraldine. She was decades older than I was and has since relocated to another state, but was my support group mentor for two years when I was in my 20s. Geraldine was a budding artist married to a world renowned architect. The couple lived by the sound in an area known as the Gold Coast, an affluent part of western Connecticut.
We spent a good amount of time driving around the area, deep in conversation about the messy sides of love and life. Every now and then, I espied a particularly luxurious house and the green-eyed monster would rear its ugly head, leading me to ask with a sneer, “Why can’t I live in a house like that?”
Geraldine’s response was always the same. “Don’t make assumptions. Facades are built to impress. We forget they are not real. The people inside are real. We do not know them. They can be poor in spirit. Sick with cancer. The facade you are looking at right now could be a cover up for domestic violence or child abuse.”
Geraldine taught me not to accept things on face value, examine beneath the surface of what appears to be real and discern the truth. It only makes sense that whenever I drive by a lawn sign, “Love Lives Here” (or any of those other saccharine signs), I immediately wonder if the sign merely conceals what is really going on inside — disease, death, destruction, dread and despair — suburban hunger and poverty.
So, this brings me to last week’s Thanksgiving holiday. We were fortunate to spend another Thanksgiving Day with my dear friend Anna and her family. The family consists of mostly well-educated, affluent medical doctors. They had invited their neighbor’s caretaker, Jose, to join us. He lives in the basement of his employers’ mega mansion. The family he works for were away for the holiday, and he was alone. In fact, this was the case last Thanksgiving when Anna and her husband also invited him to join them, taking proper precautions since it was during the pandemic’s mandatory quarantine.
It just goes to show, Anna doesn’t need to display signs of love on her lawn. You will find all the love you can imagine behind closed doors.
I had never met Jose before, but I knew he feared returning to the political and civil upheaval in his Latin country. When he arrived at the door, he wore a polyester beige top, chocolate-colored, loose-fitting trousers, with his head lowered. He grasped a burgundy wool knit hat. The skin on his hands resembled the surface of a cracked asphalt driveway. His indigo hair was sleek, straight as a piece of construction paper and held that just-brushed appearance. I would estimate he was around 50, but, maybe, the life lines covering his hardened face masked his true youth.
Realize, too, Jose does not speak a lick of English. Fortunately, Anna’s husband is fluent in Spanish, and he translated our conversations. Before our meal, Anna asked Jose to recite the prayers that he grew up with in Mexico. He willingly obliged. The words came easy like a well-worn, comfortable melody, softened with grace and elegance. I did not have a clue as to what he was saying, but I understood every word, because the language of love is universal. It tears down walls and barriers and connects us in all things good, pure and holy.
Rising above my own grief and sorrow, Jose’s eyes revealed secrets of his own sorrow as he prayed. Our connection of despair actually made me smile. We were unicorns that felt solidarity built upon a foundation of truth and faith. I realized how much I had to be thankful for, and I didn’t need a billboard to figure out that the meaning of Thanksgiving stretches to every day of the year when it is engineered with the grand and noble emotions of the human heart.
Every day since November 19, 2019, the day we lost our beloved 26-year-old son, brother and godson, marking time takes on a whole new significance after our loss.
By day’s end after posting the letter to my departed son, the outpouring of support and encouragement that I received from this blogging community was beyond what I could imagine. Your support, along with the support of a handful of family and friends in my life, has sparked an unanticipated strength that has helped me survive the sudden eclipse of my soul. Through this grief journey, you have given me faith that the sun, even though appearing dark, still shines light into our eyes. In science, this is a fact. In my pieced-together heart, this is a fact too. When the dreaded Friday arrived, I was hurt that a few family members, not to mention a number of “friends,” have disassociated with me. Nonetheless, I focused on the positive.
It was an auspicious morning. I rifled through my closet for something to wear and coincidentally pulled out the t-shirt pictured above.
“Faith does not make things easy
it makes them possible”
Later on, my daughter, my children’s godmother and I enjoyed a quiet late lunch at one of our favorite Mexican restaurants. Afterwards, we shopped for socks, but ended up purchasing a few additional food and practical items as if symbolizing the various forms of sustainment during our grief walk.
At day’s end, I was glad only our little trio gathered at the cemetery. Our unconditional love that we share made us comfortable and genuine. Standing at my son’s grave, out loud we effortlessly spoke our hearts. Our words of love, discontent, sadness, regret, guilt and the joyful opportunity of knowing him in our personal ways transformed into a meaningful elegy, resembling in many ways how our lives themselves have been molded in these last two years. It is incredulous to us still how so many irregular, broken pieces of our shattered lives have managed to create an artful mosaic.
Through streaming tears I realized, if I had skated through life unscathed as I always desired, I would not have been forced to live a life with wide open arms. In this life you take it all in. You feel deeply without numbing or canceling out the pain or heightening the joy. This, too, is the same life where you are lucky enough to own a cloak of love and support weaved by those to whom you matter.
That early evening at my son’s gravesite, Ralph Waldo Emerson’s words resonated with me: “It is not the length of life, but the depth.”
My son lived a short life, but he was so much more than the demons in his head. He was compassionate and loyal. He was full of depth, insight and a sharp wit. He lived for purpose and passion and not for possessions. I only wish more people were fortunate enough to have met him — they missed out on knowing a superior human being.
“It is not the length of life, but the depth.”
When we three parted from him, we felt grief’s depth, the painful stretch of our marathon-trained souls. In life’s irony, we were like winners who had crossed the finish line.
Yesterday, on our daily walk, the neighbors’ dog raced across his yard to greet us. Our neighbor informed us that her dog isn’t friendly to strangers. “You must have a special aura,” she explained.
Among the many definitions, “aura” means, “a subtly pervasive quality or atmosphere seen as emanating from a person, place, or thing.”
Love is our aura. Loss has taught us the extent of love’s reach. It stretches to a point of excruciating hurt, ready to break but, defying logical odds, it digs in, roots firm.
If love is truly our aura, I cannot exclude loving the people who have abandoned us. Coincidentally, I started reading Cheryl Strayed’s national best seller, Wild. She writes that some people “scatter in their grief.” This concept pulls me away from feeling angry to coming to an understanding of the ones that we have lost along the way as a result of our loss. It is too much pain for them to endure.
Afterall, the price of love will shatter the femur of our hearts. The femur, BTW, is the only bone in the thigh and is the longest and strongest of all the bones in the body. The price is high. Our little tribe pays the cost. Like expert appraisers, no one can undermine what we have come to know as true value and we willingly pay the price.
This Thanksgiving, although we will have an empty seat at our dinner table, it will not diminish my thankful and grateful heart and mind, thanks to all of you.